Tomorrow, Michael, Aiden and I will make the trip back to Chicago for surgery to remove his bubbles. I can't believe its here already! What amazes me the most with these kids that go through this process is that it doesn't phase them. They get around just fine and can pretty much do all the normal things an average kid their age can do. The bubbles become a part of who they are for a few months and to them its no big deal.
We only managed to get in one more fill on the back expander but that's ok because in that last fill we did, we made it past 750cc which is a first for us! We haven't been able to exceed the size of an expander in the past so this was definitely exciting! Dr. Bauer told us that things looked great and that there was no point in doing another fill and chancing the skin to become stressed. So the final totals for the bubbles are 770cc in the back and 155cc in the shoulder! I've been extremely proud with how well Aiden has done this entire round with the fills. Not a single tear shed because he knows it doesn't hurt and that its going to be fast. Now granted, he was never jumping up and down to fill up his bubbles but as soon as we sat him down in Daddy's lap, he never once complained! He is so brave and definitely my hero for all that he has been through.
It hasn't been smooth sailing for us this round but we have survived and it could have been a whole lot worse. We have managed irritated incisions, antibiotics for months, a hole and a bruised expander that couldn't be filled up to its capacity. With all that being said, we have some really great volume in his bubbles and should have another amazing surgery by the magic of Dr. Bauer's skill. Whether or not it will get 100% of the remaining nevus is still unknown. Although I would love to shout out that news, I can't and won't go there as many things can happen during surgery. Its going to be one nerve wracking wait until Dr. Bauer comes out and gives us the news. Whatever the news may be, I'm ready. Ready to get past this next step in the process and be that much closer to the end. Thank you so much to everyone that follows our story and helps us through this! It makes a world of difference!!!
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| This is how our fills go!!! No big deal for him! All smiles! |
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| Back at 770!!!! |
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| Trying to give mom a thumbs up!!! |
And thats a WRAP!!! Stay tuned to see how surgery number seven pans out! Wish us luck!
